NAG2 - Rare Diseases

Rare Diseases and Related Calls Advisory Group Meeting

The Meeting is dedicated to the European Joint Programme on Rare Disseases and is designed as networking event providing information on Rare Diseases research in EU and Turkey as well as on Joint Transnational Call on Rare disseass and presenting examples of collaborative projects and project proposals.

The Meeting is organised in collaboration with Sabancı University, Enterprise Europe Network and TÜBİTAK Directory for International Cooperations, Bilateral and Multilateral Relations Department.

Time	Title	Speaker
8:45– 9:15	REGISTRATION
9:15 – 9:30	Opening Remarks	-  Sabancı University -  Mr.Mete Karaca, International Cooperations Directorate, Director, TÜBITAK (tbc) -  SUNUM
9:30 – 11:00	Rare Diseases Research Activities in Turkey and Europe
	Rare Diseases Research in Turkey	-   Dr. Halil Dündar, Gazi University Medical School
	Rare Diseases Research in Europe: Clinical Trials Perspective	-   Prof. Mark Turner, University of Liverpool, UK
	European Reference Networks and Research Infrastructures in Rare Diseases	-   Prof. Luca Sangiorgi, Medical Genetic Department, Rizzoli Orthopaedic Institute, Italy
11:00 – 11:30	Coffee break and networking
11:30 – 12:30	EJP-RD - JTC2020 Joint Transnational Call on Rare Diseases
	How to write a good JTC proposal for the JTC2020 call?	-  Dr. Jale Şahin, EJP-RD Programme National Coordinator, TÜBITAK
	Where is POAs in EJP-RD Programme and their Integration to Research Projects?	-   Ms. Gulcin Gumus, EURORDIS - Patient Advocacy
12:30 – 13:30	Lunch	-
13:30 – 14:00	Success Story – 12 years of international collaborations in E-Rare: CRANIRARE - CRANIRARE -2 Experiences	Prof. Dr. Nurten Akarsu, Hacettepe University Medical School
14:00 – 14:30	Flash Presentations	-   Presentations of 4 Project Proposals (tbc)
14:30 – 16:00	B2B Meetings - Networking